For those who are going to be taking these drugs and would like to know what they are like I am talking today about my experience and side-effects. For those who just like to know how I am doing on a personal level, read this warning:
The following commentary is the sole opinion of one expert, not accredited, and will be very boring. It is likely you would rather get on pintrest or netflix than read any more of this post.
It is one week since I had my last treatment of Xgeva and Faslodex, the cocktail I am currently taking for stage IV Breast Cancer with mets on the spine and breast bone. I have treatment every 4 weeks, but the first three treatments were only 2 weeks apart. I have been getting treatment since October 2011.
In the begining I was more nervous about how I would feel, and did have a little harder time. After going to once a month treatment I have found, like with all cancer treatment, I feel pretty normal right before I get treatment again.
On the day of treatment I feel normal. I have some tenderness from the needles going into the hip muscle with the Faslodex, but really, how could that not hurt? About 5 hours after I get the shots I start wearing down. Over the next 5 days I try to take it as slow as possible. Hydration during this time, along with extra sleep and relaxation, is key to feeling my best and medeating any adverse effects for more than a week.
Today, the bone pain is setting in. I have pain in my right ankle especially. (Hopefully I don't have any enemies reading this who will attack me with a baseball bat.) I am also starting to get the headaches today. These headaches range from annoying to intense pain in a specific region of my head. My doctor is scheduling an MRI to rule out any other reason for the headaches. It is difficult to wear my contacts during this time period also. My eyes are very dry and sensitive making the contacts feel like rough sand paper after just a few hours of wear.
IMO- this cocktail is easy to tolerate. The discomfort is mild compared to chemo and the physical side effects can be managed with rest and tylonol, with the exeption of the headaches sometimes, and I have just accepted them as part of my life now. My treatment doesn't interfere with my life much. Being a soccer mom is totally doable while working full-time and being a single parent as long as I am sure to get enough nutrients from my food, drink water and sleep as needed with a little extra for good measure.
I recognize that I could push through the discomfort, even in the first 5 days following treatment, but if I do I am generally sick after that period.
I am looking forward to the weekends more than usual. The R&R is so good.
My outlook on the future is very optimistic. I will have to do some more time with cancer, but will beat it down again.
Today I am thankful for: a new game my kid and I made up where you name 2 things and have to realate them in a string of things you are thankful for in a said number of steps. It's like the Kevin Bacon game and goes like this:
Challenge: Flowers & Blenders, 4 Steps
Answer: I am thankful for flowers because they are beautiful and come bloom in the summer. I am thankful for summer because fresh produce is ripe. I am thankful for ripe produce to make smoothies. Smoothies make me thankful for my blender to liquify all those good foods into a drink.
2 comments:
Thanks for the article on xgeva. It was very interesting. I will be getting my first injection next month and am a bit nervous about side effects. I have metastatic prostate cancer but no pain and feel quite fit at the moment so I am hoping that the medication does not stop me working.
Ben in Finland
Hi Ben. Glad you found my blog!
I lived in Denmark for two years, I miss the Scandinavian culture.
Wishing you all the best as you start treatment. Please let me know how it goes.
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