First, let me say that I am please with both options. These are two very smart, decisive, educated, research-oriented physicians. They also present with different personalities and I feel that either would be a good choice. Isn't it amazing to contrast a doctor you aren't impressed with to a doctor who inspires trust and meaningful conversation?
So, how do I take all this information and provide an update to friends and family reading this blog? And how do I also provide a resource to another warrior who wants to know about my experience as they face their own?
Really, right now I want to just sleep- and I think I can sleep very peacefully. But- having all this new- and much of it very good means that I have to share it and let you know I AM GOING TO BE OK!
A quick summary, that I may expound on in future posts, would be something like this:
- Test results tomorrow will confirm if the tumor came back with the same hormonal make-up as the first cancer diagnosis. We are checking the HER2 expression. Triple Positive would be the same as before. HER2- would be a variation.
- What does that mean? As I understand, that isn't a huge determination to the ability to succeed with treatment. It does, however, change the treatment that will be used.
- HER2-: One Dr felt this outcome was possible. Treatment would be oral, not IV. Don't know what side effects there would be, don't know much, but it sounds like an easier treatment.
- HER2+ : The other Dr thought this was practically a given. Treatment would likely be a Chemo taken at regular intervals until there is no sign of cancer, and then continued for a short time as an insurance policy. This would coincide with Herceptin I.V. treatment which would continue for one year+. Herceptin does sometime cause decrease heart function, especially if a patient has taken A/C, which I have. This would require an echo every 3 months to be sure my heart is handling it, which it always has before.
- Cancer in the bones is often time more slow-growing than metastatic cancer in other places (i.e. lungs, liver, etc.) This is obviously good. It is almost always responsive when it is in the bones, so remission is highly probable. Yeah! But, no matter what the HER2 test shows I will begin a therapy (subQ injections monthly) to strengthen my bones. Cancer in the bones increases probability of fractures, breaks, and osteoporosis.
- The PET/CT test I had several weeks ago used radioactive glucose (something-something) to measure the uptake of the glucose. Areas of higher uptake signal likelihood of cancer. Along with verifying the presence or lack of activity the scan measure the rate of radioactive activity. My measurements at all 3 sights are not the highest that the Dr has seen. I understand this to mean that we are getting it while it is still smaller, newer, ... and so we are getting to this fight early.
I know that this is going to be a battle. I will have to give a few months to this fight, and it is going to take a lot.
I know that the goal is to achieve remission and stay in remission as long as possible, and then try to get back to remission if/when the cancer presents again. There is no cure for metastatic cancer. However, today's Dr said some women in my situation never have a recurrence. They maintain remission. No one knows why some do and some don't. I might be one of those women. Wouldn't it be lovely?
I know I am going to achieve remission. I believe I will raise my daughters - the most important thing in the world to me.I know God is going to take care of me and see to it that I make it through this fight to remission. I know He knows that I (me, their mom) needs to raise them. They need ME.
I know this challenge has come at an interesting time in my life, but it has moved my focus right back to what I was trying to get focused on a week before I started these tests and the subsequent oncology relationship. So, I am going to focus on that. I am blessed. I have a clear and short list of priorities. I have every reason to be hopeful.
I am thankful for:
- The Rangers in the World Series. Wow! Did you see that wild play in the world series last night? Bottom of the 8th. Final out on the Cardinals. Rangers 1st baseman does the splits to catch the ball and maintain contact with the base and thus get the 3rd out. I am thankful for exciting and unusual plays like that.
- Kiddies who are learning to read. It is so exciting to hear them sound words out. But, it is comforting that they still need your help with the tough words.
- Talking to nieces and nephews on the phone or getting text-pics of them. Family- that's what it's all about.
1 comment:
And I am thankful for you and your ability to stare this down so you can smack it down. I'm here and I'm listening and I wanted to make sure you know that.
xoxo
AnneMarie
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